Rare Disease Forum


at Hospital for Special Care, 2150 Corbin Avenue, New Britain, CT 06503
Wednesday, December 18, 2019 from 6:00p.m. – 8:00p.m.

If you, a family member, or a friend has a rare disease, please join us for an open discussion about the challenges many families face caring for a loved one and a chance to meet other families dealing with a rare disease.

Health care providers, researchers, and representatives from state agencies, academic centers, industry, and the Connecticut General Assembly (CGA) are also being invited to participate in our discussion about available state resources for rare disease families, and state legislation (or policy changes) needed to improve the lives of those living with a rare disease.

For more information or to RSVP email lesley.bennett@rarediseases.org

or visit RareCT.org